Thursday, September 13, 2012

Cancer/Life Update (90 Days into Chemo)

I haven't written a cancer/life update in a few weeks so I wanted to give you guys an update before i go for chemo treatment #5 tomorrow!


My visit to Maine back in early August was FANTASTIC!!  I got to see so many people and reconnect with a few I hadn’t seen or talked to in a while.  My friends have been amazing; Nick & Ashley, I want to thank you again so much for paying for my flight up to Maine.  You both ROCK!!  Thank you again to everyone who were my chauffeurs while I was in Maine and to everyone who made the time to see me!  (Jaime, Maddy, and Rich Stevens, Nick, Ashley, Ben, Ashton, Barbie, Jordan, Chelsea, Natalie, Nichole, Linda, Robin, Phyllis, Rachel, Sammie, Max, Rachael, Dawn, Jackie, Rhiannon, Tammy, Ross, Liz, Nate, and Tia… I think that is everybody lol).  Thanks for making this guy feel so loved!  =)  My schedule was packed though and I think I pushed myself too much while I was up there and it could have played a part into why my white blood levels were too low when I went for my fourth treatment on August 17th.

My Dad and I drove through the night from Portland into Baltimore and got there with an hour to spare before my 8am phlebotomy time.  As some of you saw on my facebook page; we had some issues with me receiving my fourth treatment.  It was the first time my blood levels hadn’t be good enough for chemo; specifically my neutrophils.  As you can see from the picture below, they were PRETTY DANG LOW!!



I couldn’t find my most recent results that included the day when I actually received my fourth treatment, which was on Thursday August 23rd, 6 days after when I should have had it, but I do remember that my neutrophils had gone up to 950/cu mm.  In order for me to receive chemo they need to be at the very least 500/cu mm.

This fourth treatment was pretty hard for me to “stomach”.  I have noticed that each treatment has gotten progressively harder for me to handle mentally and physically.  It’s kind of like my mind and body have synced up and fully understand what the drugs are doing to me.  I get anxious and a bit unsettled going to the hospital now; just the thought of the chemo drugs gives me that weird chemo taste in my mouth and makes me feel a little nauseous.   The smell of the office and even looking at the drugs bothers me.  I couldn’t watch her inject the “red devil” or the vincristine sulfate and hold to close my eyes and hold my Dads hand.  I actually need to move on from writing about it because it’s just making me feel sick, yuck!  My nurse noticed my evident discomfort this last time around and asked me what was wrong and I explained to her what I just wrote above.  She told me that this is actually pretty common with patients receiving what I am receiving and many tend to throw up before treatments #5 and #6.  She said that she could prescribe me an anti-anxiety drug that would also give me temporary amnesia which helps a lot with my next two treatments.  My first thought was, “oh great, another drug to add to my repertoire; I don’t really want any more drugs in my body”.  However, after discussing it with my parents and family more, we have decided to give it a shot.  I am someone who doesn’t like to take drugs; and even more so now because I have so many in my system.  Even before all of this, if I got a headache, I would more often than not, just drink more water and take it easy rather than pop a couple Advil.  If the headache lasted more than one day, then I would take an Advil but only half the recommended dosage and that would normally do that trick.  I think I am sensitive to drugs so I don’t need a lot.  I did get a nice surprise to have Janice visit me with my Dad this time around.  I love her, she is just so awesome; definitely one of my best friends.  She is such a blessing to have in my life.  Other than that, the chemo went smoothly.  I did need to come back the next day though for a Neulasta shot.  This is a shot that I needed to have within 24 hours of my chemo treatment because my neutrophils and white blood cells had been so low.  Neulasta is injected into my left tricep and is supposed to “jump start” my bone marrow to produce more white blood cells.  We’ll see tomorrow if it works.  There can be some side effects with it, but all I noticed was that my arms and chest (specifically my ribs) were sensitive and tender to the touch for about 3 or 4 days during my first week after the treatment.  We’ll see if it worked tomorrow afternoon when I get my blood results back.  I hope it did, because I really want to visit Maine again in two weeks for Ben & Barbie’s wedding.  I already missed one wedding this summer; I do not want to miss two, especially because I was a groomsman in both of them.

Now me having to push back my fourth treatment was not something I was happy about.  I had been planning for over a month for Ben to fly down to Virginia so that he and I, and my cousins Chad and Josh could go to the Redskins vs. Colts preseason game on Saturday August 25th.  Even though this wasn’t the smartest idea to still go, I pretty much sheer willed myself to go.  Ben was still flying in and these were AMAZING seats that my cousin got us for the game.  They are called “Dream Seats” and we sat two rows up from the field.  We also got free hot dogs, peanuts, water, sodas, and cookies up through the third quarter of the game; BONUS!  The prednisone makes me really hungry that first week of chemo so it was perfect for me haha.  I think I ballooned up to 170lbs that week but my weight gain has been pretty steady besides that week.  I have gained about 20lbs since starting chemo which is encouraging; I consistently weigh about 162lbs now.  It was a great game and the ‘Skins won which made it even better; we were even on NFL.com highlights of the RG3 to Moss touchdown since it happened right in front of our seats.  Thanks again Chad; you’re the man broham!  =)

After that weekend though I had to just rest; I was weak and very tired after that game for about a week.  I started to feel better eventually and did another workout class with Janice.  It’s fun and is actually a pretty darn good workout.  My legs felt like cement and were sore for 3 days after.  Against my own stubbornness, I decided to skip my 3 mile run this week; I don’t want to push my body too hard.  I need my white blood cells to be high enough for treatment this time around because I really want to get back up to Maine for the wedding.

I also need to give a HUGE shout-out to my man Cody who has been starting another fundraiser for me in Maine.  He has been putting a lot of time and work into it.  I also have had done two interviews; one over Skype and the other over the phone with "The Free Press" (my college's newspaper) and the "The Bangor Daily News" respectively.  They are doing stories on me to help promote the fundraiser as well as to promote Lymphoma awareness.  It affects younger men more than anyone else for some reason so I want to spread that knowledge to other guys in their twenties. 

 
Thanks Cody, you are such a GREAT friend!!

I have been getting more involved at my church and I am really excited about it!  I am going to be co-leading a new connection group for 17-26 year olds with the pastors’ daughter.  It is going to be based off of this great book I am currently reading titled Emotionally Healthy Spirituality by Peter Scazzero. 

It explores the following:  You can’t be spiritually mature while remaining emotionally immature. Even though Peter was the pastor of a growing church, he did what most people do:

·         Avoid conflict in the name of Christianity
·         Ignore anger, sadness, and fear
·         Use God to “run” from God
·         Live without boundaries

Eventually God awakened him to a biblical integration of emotional health, a relationship with Jesus, and the classic practices of contemplative spirituality. It created nothing short of a spiritual revolution, utterly transforming him and his church.  In this book Scazzero outlines his journey and the signs of emotionally unhealthy spirituality. Then he provides seven biblical, reality-tested ways to break through to the revolutionary life Christ meant for you.  The combination of emotional health and contemplative spirituality, he says, unleashes the Holy Spirit inside us so that we might experientially know the power of an authentic life in Christ”. 

One of my favorite excerpts so far from my reading is the following:

God made us as whole people, in his image (see Genesis 1:27). That image includes physical, spiritual, emotional, intellectual, and social dimensions.  Ignoring any aspect of who we are as men and women made in God’s image always results in destructive consequences; in our relationship with God, with others, and with ourselves. If you meet someone, for example, who is mentally challenged or physically disabled, his or her lack of mental or physical development is readily apparent. An autistic child in a crowded playground standing alone for hours without interacting with other children stands out.  Emotional underdevelopment, however, is not so obvious when we first meet people. Over time, as we become involved with them, that reality becomes readily apparent.  I had ignored the “emotional component” in my seeking of God for seventeen years. The spiritual-discipleship approaches of the churches and ministries that had shaped me did not have the language, theology, or training to help me in this area. It didn’t matter how many books I read or seminars I attended in the other areas; physical, social, intellectual, spiritual. It didn’t matter how many years passed, whether seventeen or another thirty. I would remain an emotional infant until this was exposed and transformed through Jesus Christ. The spiritual foundation upon which I had built my life (and had taught others) was cracked. There was no hiding it from those closest to me.  I had been taught that the way to approach life was through fact, faith, and feelings, in that order. As a result, anger, for example, was simply not important to my walk with God. In fact, it was dangerous and needed to be suppressed. Most people are either “stuffers” or “inflictors” of their anger. Some are both, stuffing it until they finally explode onto others. I was a classic stuffer, asking God to take away my “bad” feelings and make me like Christ.  My failure to “pay attention to God” and to what was going on inside me caused me to miss many gifts. He was lovingly coming and speaking to me, seeking to get me to change. I just wasn’t listening. I never expected God to meet me through feelings such as sadness, depression, and anger.  When I finally discovered the link between emotional and spiritual health, a Copernican revolution began for me and there was no going back. This revolutionary link transformed my personal journey with Christ, my marriage, parenting, and, ultimately, New Life Fellowship Church where I pastor.  

^pretty awesome huh!?  I love it because I feel like I have encountered a lot of Christians in my journey so far that think (not always consciously) that once they accept Christ into their lives, they all of a sudden can’t be “human” anymore.  Listen, our humanity will not leave us in this life and the sooner we can accept that simple fact and everything that pertains to that knowledge, we can start on the road of recovery and truly begin to understand, as much as humanly possible, God’s AMAZING GRACE in our lives.  Does that mean that we should continue to be the same people we were before knowing Christ or “being” of this world; no of course not.  God calls us to be set apart from the world and that we are new creations in Christ; but we will never be perfect examples of Him.  If that were possible, we would have never needed Jesus in the first place.  He gave us a living example of how we should STRIVE to live our lives, but never expected us to do it without falling short from time to time; for we were saved by GRACE not by our works or deeds.

“Do not conform to the pattern of this world, but be transformed by the renewing of your mind. Then you will be able to test and approve what God’s will is; His good, pleasing and perfect will.” – Romans 12:2

“Anyone who believes in Christ is a new creation. The old is gone! The new has come!” - 2 Corinthians 5:17

“God’s grace has saved you because of your faith in Christ. Your salvation doesn’t come from anything you do. It is God’s gift.” - Ephesians 2:8

Also, this devotional from Jesus Calling was a great reminder that God is the Great Physician and it brought me encouragement and inspiration recently.

“I AM A GOD WHO HEALS. I heal broken bodies, broken minds, broken hearts, broken lives, and broken relationships. My very Presence has immense healing powers. You cannot live close to Me without experiencing some degree of healing. However, it is also true that you have not because you ask not. You receive the healing that flows naturally from My Presence, whether you seek it or not. But there is more; much more, available to those who ask.  The first step in receiving healing is to live ever so close to Me. The benefits of this practice are too numerous to list. As you grow more and more intimate with Me, I reveal My will to you more directly. When the time is right, I prompt you to ask for healing of some brokenness in you or in another person. The healing may be instantaneous, or it may be a process. That is up to Me. Your part is to trust Me fully and to thank Me for the restoration that has begun.  I rarely heal all the brokenness in a person's life. Even My servant Paul was told, "My grace is sufficient for you," when he sought healing for the thorn in his flesh. Nonetheless, much healing is available to those whose lives are intimately interwoven with Mine. Ask, and you will receive.  Check out the verses Psalm 103:3; James 4:2; 2 Corinthians 12:7-9; Matthew 7:7 as they all correspond to this devotional.

I also have volunteered working in the office a couple times doing various things they need done and last Thursday while I was there I had mentioned to Ryan, the music minister, if he had heard the new Matthew West single “Forgiveness”.  He checked out and was so moved by it that he added it to last Sunday’s worship service.  He also asked me to join them for practice later that night.  Now I reminded him that I was only working on one good vocal cord because of the tumor in my chest and that even before then, I wasn’t the greatest singer.  He insisted though that I just come and that my unique energy would be very welcomed.  I hesitantly and reluctantly agreed.  I got back there later that night and Ryan looked like he had been crying; he said that he kept listening to the song all afternoon and realized that there was no way he could teach us this song or sing it if he didn’t let go of the bitterness he had been holding on for the past 4 years against a few old friends.  He called each one of them up and forgave them all and asked them all for forgiveness as well.  I was so happy to hear that; it just made me smile and I gave him a big hug!  HALLELUJAH, GOD IS SO GOOD!!!  He told me that it felt like a huge weight had been lifted off of his shoulders.  He had been freed from the pain in his past!  I was so happy for him and I gotta tell you, the worship practice was SO MUCH FUN!!  I came home so happy and full of joy and energy.  I really love praising God; no doubt about it!  The rest of the band members wanted me to join them that Sunday for both 9am and 11am services.  I was so nervous when I got on stage for the first service, I was almost literally jumping up and down and I made sure I told the AV guy to keep my mic turned down low.  I was definitely up there more to use my “body” as an instrument praising the Lord.  The worship at this church is a little stagnant to be honest and so I was hoping by me being up there, I could bring a little more life into the praising.  In no way am I trying to float my boat because everyone was AMAZING during both services; the church has some really talented people in it’s worship team; but when I had a few people after each service come up to me and tell me that they loved my worship and that I was an inspiration to them; it truly made my day!  I love how God is using my cancer into something good; not just in my own life but in the lives of others.  I gotta say that it brought SO MUCH joy.  The three songs we sang are the last three listed below on this blog’s playlist and directly below are the lyrics to “Forgiveness” that moved me and many other people that day.

It's the hardest thing to give away
And the last thing on your mind today
It always goes to those that don't deserve

It's the opposite of how you feel
When the pain they caused is just to real
It takes everything you have just to say the word...

Forgiveness
Forgiveness

It flies in the face of all your pride
It moves away the mad inside
It's always anger's own worst enemy
Even when the jury and the judge
Say you gotta right to hold a grudge
It's the whisper in your ear saying 'Set It Free'

Forgiveness, Forgiveness
Forgiveness, Forgiveness

Show me how to love the unlovable
Show me how to reach the unreachable
Help me now to do the impossible

Forgiveness, Forgiveness

Help me now to do the impossible
Forgiveness

It'll clear the bitterness away
It can even set a prisoner free
There is no end to what it's power can do
So, let it go and be amazed
By what you see through eyes of grace
The prisoner that it really frees is you

Forgiveness, Forgiveness
Forgiveness, Forgiveness

Show me how to love the unlovable
Show me how to reach the unreachable
Help me now to do the impossible
Forgiveness

I want to finally set it free
So show me how to see what Your mercy sees
Help me now to give what You gave to me
Forgiveness, Forgiveness



I am pretty nervous for tomorrow; I really just hate chemotherapy and am nervous for how the Lorazepam is going to affect me.  I could really use your prayers tomorrow!!  God is continuing to bless me because along with my Mom, Janice and Ryan are gonna visit me in the hospital tomorrow.  #SOTHANKFUL

Many of the devotionals in Jesus Calling have been helping me through this battle; especially this one before tomorrow. 

“TRUST ME in the midst of a messy day. Your inner calm, your Peace in My Presence, need not be shaken by what is going on around you. Though you live in this temporal world, your innermost being is rooted and grounded in eternity. When you start to feel stressed, detach yourself from the disturbances around you. Instead of desperately striving to maintain order and control in your little world, relax and remember that circumstances cannot touch My Peace.  Seek My Face, and I will share My mind with you, opening your eyes to see things from My perspective. Do not let your heart be troubled, and do not be afraid. The Peace I give is sufficient for you”.  Check out the verses John 16:33; Psalm 105:4; John 14:27 as they all correspond to this devotional.

This upcoming week, I challenge you all to seek Forgiveness.  Ask for forgiveness from those you have hurt, seek forgiveness from those who have hurt you, and above all do both in prayer with God.  It isn’t worth it to hold onto the bitterness and pain that weigh you down.  Forgiveness does not justify what the person did in any way, but without it, you can be holding down that person AS WELL AS yourself.  And if needed, do it more than once.  God calls us to forgive as many times as we have to.

“Then Peter came to Jesus and said, ‘Lord, how many times may my brother sin against me and I forgive him, up to seven times?’ Jesus said to him, ‘I tell you, not seven times but seventy times seven!” - Matthew 18:21-22

I love you all!

God Bless

-Matthew    =)


Blog Playlist:
Lecrae ft. Suzy Rock – No Regrets  <----CANNOT GET ENOUGH OF THIS JAM!

2 comments:

Ashley and nick said...

Great post Matt. We miss you!

Cathy said...

Any updates on this? God is our healer and strength